In the case of affected person advocacy, an enormous a part of the expertise is telling your story. Whether or not you’re sharing it on social media, in an interview, to a fellow assist group attendee, or with somebody whom you simply met on the road, there’s plenty of choices you must make!
What particulars ought to I share?
How can I condense this story?
How a lot medical info ought to I embrace?
Does this particular person even know what my situation is?
Affected person Chief Jed Finley, who writes on AnkylosingSpondylitis.web and AxialSpondyloarthritis.web, has damaged down among the steps he took to create his “go to” story. As he states within the article: “You by no means know when somebody goes to ask, so you need to be ready to share.” Learn his recommendation on “Getting ready to Share” right here.
